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Resource Guide for Myelodysplastic Syndrome (MDS)

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American Cancer Society

Address:
National Home Office
250 William Street NW
Atlanta, GA 30303
Phone:
1-800-227-2345
Internet address:
http://www.cancer.org
Description of services provided:
The American Cancer Society provides educational information about all types of cancer, and news and research resources for patients, their families, and caregivers. Live chat via Internet is available to get information and support. The site also provides access to clinical trial information and treatment centers. Volunteer, donation, and fundraising information are also available.

National Cancer Institute

Address:
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone:
1-800-422-6237
Internet address:
http://www.cancer.gov
Description of services provided:
The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS. The organization also provides a service called LiveHelp where you can chat with an information specialist directly from the website.

The MDS Foundation

Address:
4573 South Broad Street
Suite 150
Yardville, NJ 08620
Phone:
1-800-MDS-0839 (inside US)
609-298-1035 (outside US)
Description of services provided:
Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. You can also find a patient handbook and other articles.

American Society of Hematology

Address:
2021 L Street NW
Suite 900
Washington, DC 20036
Phone:
202-776-0544
Internet address:
http://www.hematology.org
Description of services provided:
The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.

Association of Cancer Online Resources (ACOR)

Address:
173 Duane Street
Suite 3A
New York, NY 10013-3334
Phone:
212-226-5525
Internet address:
http://acor.org
Description of services provided:
This site offers publications, disease-specific information, clinical trial information, mailing lists, and lists of caregiver and referral services.

Cancer Care

Address:
275 Seventh Avenue
New York, NY 10001
Phone:
1-800-813-4673
212-712-8400
Description of services provided:
Cancer Care provides free professional help to people with all forms of cancer through counseling, education, information, referral, and direct financial assistance.
Last reviewed August 2017 by EBSCO Medical Review Board Michael Woods, MD, FAAP
Last Updated: 6/21/2016

 

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