A person's body hair may also be white or lighter than normal. It depends on how much melanin their body makes.
The disorder is often diagnosed at birth based on the way the baby looks. The doctor may ask about your symptoms and health history. You may also be asked whether you have family members with albinism. A physical exam will be done. It will focus on the hair and skin. An eye exam will also be done.
There is no cure. The goal of treatment is to manage symptoms. Choices are:
Eye care, such as regular eye exams, corrective lenses, and vision aids
Sun protection, such as wearing protective clothing, sunblock with SPF 30 or higher, and sunglasses with UV protection
Some people may also need surgery to correct eye problems, such as strabismus.
Albinism. Genetic and Rare Diseases Information Center website. Available at: https://rarediseases.info.nih.gov/diseases/5768/albinism. Accessed March 3, 2021.
Albinism. NHS website. Available at: https://www.nhs.uk/conditions/albinism. Accessed March 3, 2021.
Driscoll DJ, Miller JL, et al. Prader-Willi Syndrome. GeneReviews 2016 Feb.
Information bulletin—what is albinism? National Organization for Albinism and Hypopigmentation website. Available at: https://www.albinism.org/information-bulletin-what-is-albinism. Accessed March 3, 2021.
Prader-Willi syndrome. EBSCO DynaMed website. Available at: https://www.dynamed.com/condition/prader-willi-syndrome-27. Accessed March 4, 2021.
Last reviewed December 2020 by
EBSCO Medical Review Board
Kari Kassir, MD
Last Updated: 3/4/2021
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