American Academy of Pediatrics
345 Park Boulevard
Itasca, IL 60143
1-800-433-9016
https://www.aap.org
The American Academy of Pediatrics is a great resource for both parents and health professionals. Included on the site is a detailed policy statement on how best to manage sickle cell disease called "Health Supervision for Children with Sickle Cell Disease."
Sickle Cell Disease Association of America
3700 Koppers Street
Suite 570
Baltimore, MD 21227
1-800-421-8453
http://www.sicklecelldisease.org
This site includes information on sickle cell disease, how to cope with its complications, who is affected, and how to join in efforts to research treatments. A chat room allows you to chat online with other people interested in sickle cell disease. Information on conferences, news releases, and a newsletter allow you to stay up-to-date on the latest research efforts.
